the back story

January 12 was Josie's big birthday. And that's what I really want to post about. But there's a lot of behind the scenes information that you need to know. It was full of happy moments, and also, not-your-normal kind-of-birthday moments. I haven't posted anything about some of the health stuff that's been going on with Josie over the last several months because, I guess I just didn't feel up to rehashing all the details. It's a long story and frankly, I'm at a time right now where I just don't like sitting in this computer chair for very long! So, as a back story before we get to the birthday fun, I'll fill you in on the details of what we've been dealing with.

But to start, here's a fun picture of Josie just before her birthday. The angel hair is in full fluff mode!

It's hard to get a crisp image of this little mover and shaker!

Sometime around mid August, I noticed some swelling around Josie's left ankle. She didn't act like it hurt, she walked normally and so I thought I must have missed her twisting it or something. But three weeks later, the swelling persisted. Over the next several months, we went through multiple pediatrician appointments, several rounds of xrays, and a trip to a pediatric orthopedist who ordered further xrays and an ultrasound. No one seemed too alarmed, though a bit puzzled and we left the ortho with no real answers and plans for an MRI in order to see more detail around the ankle. This was the week just after Thanksgiving.

Two days later, Josie woke up in the night with pain, further swelling in the ankle and a mild fever. She couldn't get comfortable to sleep and was unable to stand or walk. It was a quick and alarming turn. Honestly, seeing her try to stand only to crumple to the floor was a heartbreaking scene.

The following day was spent in the ER doing more xrays, bloodwork and she had to fast from all liquid and food in case they ordered the MRI. It was a sad and difficult day for her, and for us, but I was hopeful that at least by the end of the day, we'd have an answer to what was causing the trouble.

But that didn't exactly happen. They ruled out all the really scary things like cancer, lupus and a "septic joint" and said that they suspected arthritis (this was one of our earliest questions we'd had since Bryan's youngest brother had juvenile rheumetoid arthritis. Doctors kept dismissing that idea since it's somewhat rare to see it in kids this young as well as without any other symptoms.)

We've met with arthritis specialists and the Juvenile Rheumatoid Arthritis diagnosis is nearly certain with them, though I haven't quite "embraced" it yet...I am interested in investigating any dietary sensitivities that might cause arthritis symptoms and meet with a homeopathic practice in a couple of weeks...more info to come later, I'm sure.

So.....anyhow....all the backstory to say that, on her birthday, Josie was scheduled to receive a cortisone (steroid) shot in her ankle to decrease the swelling so that we could relieve any pain for her and also get her off medication. The doctors said that half of their patients who are only affected in one joint will receive this shot and never have any further issues. So that's what we are praying for!

The people at Children's Hospital are so great and had birthday balloons for Josie as well as two wrapped gifts and birthday cake. It was really helpful because she played with the toys non stop until it was time for the laughing gas. They gave her a baby doll and a tea set. I loved watching her feed her little baby with a spoon!

She never shed a tear the whole time, even with the anesthetic mask on and doctors in her face. She was incredible. It's been three days since the shot and her swelling is probably about 80% gone. I'm praying for a total recovery...

...now that you're informed, feel free to jump to the next post for all the happy birthday fun!!